You can help millions by giving money to research CGD.
Welcome to our new website.
By Liz Nelson, Chief Executive
If this is the first time you have ever heard of CGD (Chronic Granulomatous Disorder), that is great - our new website has already achieved something!
Perhaps, like I did, you'll find yourself wanting to do something to help. Though rare itself, CGD happens to be a very good model for helping researchers to crack numerous other genetic problems. So by getting involved or making a donation to help the minority with CGD, you can potentially help millions more people.
Please have a good look around, and keep visiting. We have designed the site to have something for everyone. We expect to complete the site with interactive elements including discussion forums in the coming weeks. The Editor would love to hear your opinions and ideas, so we can make the site the very best it can be.
What is CGD (Chronic Granulomatous Disorder)?
CGD is a rare and life-threatening genetic condition which affects just four in a million of us. You are born with a faulty gene in your bone marrow, meaning your white blood cells cannot fight infections as they should. People with CGD have to take powerful antiobiotics and antifungals every day. But thanks to gifts from people like you, our understanding of CGD has hugely improved in recent years. Treatments including bone marrow transplants are increasingly successful. There are new cures around the corner including gene therapy, now at clinical trials stage.
Why is research into CGD a high priority?
Because top scientists increasingly believe that understanding CGD is helping them unlock cures to many other serious diseases, and therefore will help to end the suffering of millions of people.
That is why your visit to this website is incredibly valuable. Please give whatever you can afford.
NEWS
October 6th is Jeans for Genes Day
Jean for Genes Day is the biggest day in our whole year, bringing in a fantastic number of donations to plough into research projects, helping us find cures for chronic granulomatous disorder and other conditions. The donations also go towards our year-round expert care and support for families living with CGD. Because ten national charities all work together as Jean for Genes, your donation will help multiple causes, not just our own.
Please join in this wonderful day, which is a time to have fun for a good cause. You will find all the options open to you on the Jean for Genes.com website.
The site explains exactly what the charity does, has personal stories from people
affected by genetic disorders, celebrity profiles, and most importantly of all,
how YOU can get involved: at nursery, school, college, work, on your own....you
name it, we've tried to make it easy for you to contribute your talent, energy
and imagination. And there are chic items to buy like the new Jean for Genes mobile
phone charm. The theme for this year is "Dress to Impress".
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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