As a disorder people are born with, CGD directly affects all agegroups, and we are keen to provide for younger as well as older people on this new site. By younger people we mean ages 0-21, so we will need several distinct new areas – perhaps for pre-school years, schoolchildren, early teens and young adults. And we want all younger people to enjoy the site, whether or not you have a personal connection with CGD.
You know best what you would like to see on these areas of the site and the Editor wants to hear from you (whether you are young yourself, or for example have children or pupils to consider).
So far, we have got the message that younger people want much more content tailored to their interests and needs, and they have been enthusiastic about interactive elements like forums and ways to chat, and links to sites where they can play games and do other fun activities. We expect to develop a good list of links here.
We take the safety of younger site visitors very seriously, especially children, so it will take time to develop this area of this site in accordance with advice from children’s groups. Please note that interactive elements will not be possible for a few weeks, while we build a fully dynamic version of this site. Meanwhile, you can bombard the Editor with your suggestions. What do YOU want?
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2005 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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